Monday, November 13, 2017

Prematurity Awareness Month Goes A Long Way For Our Family

Since we have a lot of new followers on our page I want to introduce you to Nathan and Noah who our my inspiration on this page and my hope. I have been very open about my twins life from birth till now, for many reasons, not just because I think they are adorable little men,but because our life isn't typical to those most looking in. Secondly, because they fought to live. Looking at them without asking me,you would think they are healthy 4 year old boys. Yes you are right, for Nathan and Noah they are the healthiest right now. You don't know their health struggles though. Chronic lung disease and weight issues. Asthma severe ADHD Anxiety and possible ODD. You don't know between the two of them we almost lost them multiple times and that they have had heart,eyes, feeding, hernia tubes, oxygen, picks and pricks. You don't know that a germs can put them in the hospital easily and Winter is our families worst enemy. That routine procedures like removing tonsils for example, are more extreme and that we always end up in the pediatric intensive care unit just in case and that back in July our family witnessed 20 seconds of complete fear and confusion all because one twin froze and stopped breathing in our arms . Longest 20 seconds. But now we wait for more testing. You don't know, that Nathan and Noah had over a handful of blood transfusions and fought collapsed lungs and lung infections. All of this that you don't know is just the tip of what these two  boys have been going through. 6 months of their lives in a hospital followed by multiple specialist appointments, therapies, and hospital stays. They are just like your children in many ways but they have special needs that are unique to them. Why I feel the need to remind everyone is to keep hope, and positive vibes not just because I feel that our families adventure could leave others just like us with hope as well but,because I know I was and still am that person that needs the mommy groups and second opinions and to feel that my family isn't alone in this adventure. Most importantly November is Prematurity Awareness MONTH and Prematurity still plays a big important piece in our lives #awareness  #inclusion

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