Parenting twin boys in a typical world. Spreading awareness and inclusion on what life is all about when you become parents of special need children.
Thursday, November 21, 2013
Operation: weaning our oxygen
Yesterday was Noah's sleep study. He got to be off oxygen for about 30 min. He did very well actually while awake but when he started to doze off he started to bounce all over in desats. I'm not going to get down about it it's a step in the right direction. Just like when we were in the nicu, the boys always had to do slower weans. It was nice to see Noah's face without the cannula. 7 months and all we know is tubes and more tubes so we come use to the tubes like its apart of the boys. Really that's all the boys know. I wonder if they feel lost without what is apart of them since they were born.
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